Table 2 Distribution of responses in the two surveys
Question | N =1,041 N (%) |
|---|---|
Beliefs about Genetic Research | |
1. Do you feel it is an important gift to society when a person takes part in medical research | |
Yes | 885 (83.02) |
Maybe | 156 (14.64) |
No | 25 (2.35) |
2. How do you feel about genetic research | |
Approve | 875 (82.24) |
Unsure | 180 (16.91) |
Disapprove | 9 (0.86) |
3. How would you feel about your genetic data being taken from you blood sample (your identity would not be known) and being used in medical research | |
Approve | 751 (70.79) |
Unsure | 253 (23.84) |
57 (5.37)) | |
Personal privacy | |
4.Would you be willing to join the BioGeneBank * | |
Yes | 556 (52.72) |
Not sure | 364 (34.36) |
No | 137 (12.94) |
5. Reasons for refusal among those who answered not sure/no: | |
Having an extra tube of blood drawn | 66 (14.22) |
Keeping information private and secure | 332 (74.02) |
Interfering with nature by taking part in genetic res. | 49 (11.6) |
6. Would you be willing to provide extra info: about your daily habits | |
Yes | 586 ( 56.95) |
Most likely | 275 (26.68) |
May be | 122 (11.83) |
No | 47 (4.54) |
6a. about your family’s health | |
Yes | 682 (66.38) |
Most likely | 211 ( 20.5) |
May be | 89 (8.66) |
No | 46 (4.46) |
Informed consent process | |
7. Would you be comfortable if an “opt-out” approach was used in the BioGene Bank? | |
Yes | 461 (44.37) |
Most likely | 197 (18.96) |
Maybe | 166 (15.97) |
No | 215 (20.71) |
8a. Uncomfortable enrolling in a research without having the study explained to# | |
Yes | 376 (61.94) |
Probably | 122 (20.11) |
May be | 64 (10.52) |
No | 46 (7.43) |
8b. Concerned about being enrolled in a research without my knowledge# | |
Yes | 459 (74.77) |
Most likely | 83 (13.48) |
May be | 39 (6.44) |
No | 33 (5.33) |
8c. Worried that other kinds of research would be done that I don’t approve of# | |
Yes | 384 (62.18) |
Probably | 89 (14.42) |
May be | 76 (12.45) |
No | 68 (10.96) |