Concept | Measure or variable | Survey version |
---|---|---|
Part 1: Your feelings In general | Â | |
Subjective Wellbeing | PWI: Personal Wellbeing Index [30] | ALL |
Emotional Wellbeing | WHO-5: World Health Organisation Well-being index [31] | ALL |
Depression | PHQ-9: Patient Health Questionnaire [32]^ | ALL |
Anxiety | GAD-7: General Anxiety Disorder Questionnaire [33]^ | ALL |
Part 2: Your feelings about diabetes | Â | |
Diabetes specific quality of life | QoL-Q Diabetes [27] | ALL |
Diabetes-specific distress | DDS: Diabetes Distress Screening Scale [28]#; PAID: Problem Areas In Diabetes scale [29]#^ | ALL |
Diabetes-specific positive well-being | 4-item subscale of the W-BQ28: Wellbeing Questionnaire [34] | ALL |
Part 3: Your general health | Â | |
General health | EQ5D-5L [35]; 3 items (general health in past 4 weeks; change in health in past year)* | ALL |
Miscellaneous | 7 items: other conditions/co-morbidities*^; sleep*; transplants*; dialysis*; weight loss surgery* | ALL |
Part 4: Support from health professionals | Â | |
Health consultations | 29 items (main health care professionals, access, reliance, distance, consistency, continuity, distance/cost as an obstacle, timely appointment attendance)*^ inspired by the ALSHW Survey 2009 | ALL |
Healthcare and self-management | RSSM: Resources and Support for chronic illness Self-Management scale [36] | T1A, T2IA, T2A |
Structured education | 4 items* inspired by the IDF Diabetes Atlas 2009 | T1A, T2IA, T2A |
Empowerment | DES-SF: Diabetes Empowerment Scale Short Form [37] | ALL |
Health literacy | HeLMS: Health Literacy Management Scale (seven of eight subscales included) | ALL |
Part 5: Support from friends and family | Â | |
Peer/family support | 3 items* inspired by Tang et al, 2008 [38]; DFSC: Diabetes Family Support and Conflict [39], Diabetes support group involvement* | T1B, T2IB, T2B |
Part 6: Your diabetes | Â | |
Diabetes history | Age at diagnosis*^; diabetes type*^; current treatment regimen*^ | ALL |
Blood glucose monitoring and recording | 6 items (satisfaction, monitoring, recording, action)* inspired by the DAFNE self-management questionnaire (in development)* | ALL |
Self-care behaviours & attitudes | Diabetes Self-Care Inventory--Revised^ adapted to include smoking items* inspired by the Smoking and Health Survey 2010 (the Cancer Council Vic)[40] | ALL |
Medication adherence | MARS: Medication Adherence Rating Scales [41] (Insulin and/or Medicine) | ALL |
Blood glucose level and HbA1C targets | 4 items*^ | T1A, T2IA, T2A |
Hypoglycaemia awareness | The Gold Score [42]; 5 items from the HypoA-Q: Hypo Awareness Questionnaire [43]^ | T1A |
Hypoglycaemia treatment | 1 item* | T1A |
Fear of hypoglycaemia | 2 items* inspired by the Hypoglycaemia Fear Scale [44] | T1A |
Insulin restriction | Items inspired by Diabetes Australia-Vic's Type 1 Diabetes and Eating Disorders Online Survey 2008 Report* | T1B |
Disordered eating | 6 items* inspired by Type 1 Diabetes and Eating Disorders Online Survey 2008 report | T1B |
Perceived behavioural control | 15 items* | T2IB, T2B |
Physical activity | IPAQ: International Physical Activity Questionnaire (Short Form) [45]; 5 items* | T2IB, T2B |
Psychological insulin resistance | ITAS: Insulin Treatment Appraisal Scale [46]^ | T2IB, T2A |
Part 7: Your thoughts and beliefs | Â | |
Optimism | LOT-R: Life Orientation Test--Revised [47] | T1B, T2IB, T2B |
Perceived self-efficacy | GSE: General Self-Efficacy Scale [48] | T1B, T2IB, T2B |
Self-esteem | Rosenberg Self-Esteem Scale [49] | T1B, T2IB, T2B |
Beliefs about illness | BIPQ: Brief Illness Perceptions Questionnaire (diabetes version) [50]^ | T1A, T2IA, T2A |
Beliefs about medicines | BMQ: Beliefs about Medicines Questionnaire (medicine/insulin and general) [51] | T1A, T2IA, T2A |
Part 8: About you | Â | |
Demographics | 25 items (e.g. sex, age, weight/height, education, occupation, disability)*^ inspired by the ALSWH 2009 | ALL |
Financial hardship | Economic Hardship Questionnaire [52]; 8 items* | T1B, T2IB, T2B |
NDSS access | 4 items* from previous NDSS surveys | ALL |
Part 9: Have we missed anything? | Â | |
Further comments | Free-text box | ALL |
Part 10: Future Research | Â | |
What research would you like to see? | Free-text box | ALL |
Interest in future research | 2 items* | ALL |