Bittman & Thomson. Invisible Support: The determinants of time spent in informal care. 2000. 
Method: survey. Quantitative analysis of ABS Time Use Surveys and Survey of Disability, Ageing and Carers. Uses this secondary data re: time burden/ use among carers, with a major focus on non-coresidential vs coresidential care.
Characteristics of care recipients and informal carers include: living arrangements of carers and care recipients, level of disability, household income, poverty rates and effects on various lifestyle features.
Bittman et al. Making the invisible visible. The life and time(s) of informal caregivers. 2004. 
Method: survey and diary. Quantitative data from surveys and diaries from Canadian (N= 10,749) and Australian (N= 14,000 approximately) bureaux used to explore and compare time burden and time use among carers and non-carers, as well as methodological issues in obtaining data and measuring time use and caring activities.
Multiple samples: patients and carers
Main variables are co-residency and non-care responsibilities.
Bittman, M. et al. The time cost of care. 2005. 
Method: survey and diary. This paper contrasts two different measures of care time using survey questions or a diary.
Multiple samples: carers
Braithwaite, V. Bound to Care. 1990. 
Method: qualitative, descriptive and survey. Overall, takes a sociological view of what a caregiver is/does and means, it's not just tasks and burden, but a relationship and a responsibility.
Although dated, and focused on care-givers, does provide some early basic data on time and other burdens in caring.
Corbin, J. & Strauss, A. Managing chronic illness at home: Three lines of work. 1985. 
Mainly cardiovascular diseases, cancer, stroke, & spinal injuries.
Method: qualitative. Interviews and (auto) biographies of people with CI and their spouses.
60 couples: patients and carers
Uses the concept of "work" in managing CIs and types of work: illness, everyday and biographical work.
Ettner, S. et al. Investing time in health: do socio- economically disadvantaged patients spend more or less extra time on diabetes self-care? 2009. 
Method: survey. Comprehensive survey and statistical analysis, using several variables (education, marital status, income, minority group/ethnicity status, work status, clinical characteristics) but limited to one CI; looks at only foot care, exercise and (conflates) shopping/cooking.
Objective: To examine associations between socioeconomic position and extra time patients spend on foot care, shopping/cooking, and exercise due to diabetes.
Hu, P. & Reuben, D. Effects of managed care on the length of time that elderly patients spend with physicians during ambulatory visits. 2002. 
Method: survey. Cross-sectional analysis of the 1998 National Ambulatory Medical Care Survey.
4,964 elderly patients
Infante, et al. How people with chronic illnesses view their care in general practice: a qualitative study. 2004.
Method: qualitative. 12 focus groups.
Objectives: To explore the perceptions of patients with chronic conditions about the nature and quality of their care in general practice.
Ironmonger, D. The value of care and nurture provided by household work. 1994. 
Method: survey. Comparative statistical analysis of mainly ABS survey data of aggregates hours for aged care and related household activities
Multiple samples: carers
Jenkins, C. Women, work, and care giving: How do these roles affect women's well-being? 1997. 
Method: survey. Statistical analysis of data from the 1988 National Survey of Families & Households (USA); how much time in care- giving and other activities, and effects on stress levels.
14,500 female carers
Langa, K., et al. Informal caregiving for chronic lung disease among older Americans. 2002. 
Method: survey. Multivariable regression models using data from the 1993 Asset and Health Dynamics Study by survey.
National population-based sample of 7,443 community- dwelling elderly patients >70.
Measurements: Weekly hours of informal care giving, and imputed cost of caregiver time.
The average number of hours per week of informal care was calculated for: activities of daily living (ADL); and instrumental activities of daily living (IADL).
McCoy, L. Time, self and the medication day: a closer look at the everyday work of 'adherence'. 2009. 
Method: qualitative. 21 interviews and 16 focus-groups with people taking antiretroviral drugs.
McKenna, K. et al. Comparison of time use, role participation and life satisfaction of older people after stroke with a sample without stroke. 2009. 
Method: qualitative & time use diary. Interviews with 23 participants and data compared with a prior study. Interviews prompted participant recall using calendars and diaries.
23 patients >65 yrs old 1– 3 yrs post-stroke (mean age
74.2 years, 69.6% men)
Paoletti, I. A half life: Women caregivers of older disabled relatives. 1999. 
Method: qualitative. Interviews and discourse analysis.
50 female paid and unpaid carers.
Pritchard, P. Doctors, patients and time. 1992. 
Method: Descriptive. A narrative description about time and time use, different kinds of time, from both patients' and Doctors' perspective, their perceptions of the other's perceptions of time and its use and value.
Reed, et al. Economic evaluation of home blood pressure monitoring with or without telephonic behavioral self-management in patients with hypertension. 2010. 
Method: RCT (other). A prospective economic evaluation alongside a randomized controlled trial of 636 patients with hypertension participating in the study's 3 interventions. Medical costs were estimated using electronic data representing medical services delivered within the health system. Intervention-related costs were derived using information collected during the trial, administrative records, and published unit costs.
Russell, L. et al. Time requirements for diabetes self-management: Too much for many? 2005. 
Method: qualitative. A convenience sample of 8 certified diabetes educators to derive consensus-based estimates of the time required for all self-care tasks recommended by the American Diabetes Association.
8 certified diabetes educators
(concerning patient time use)
Russell, L. et al. Health- related activities in the American Time Use Survey. 2007. 
Method: survey. Compilation and statistical analysis of ATUS survey data on Health-Related Activities in America.
Russell, L. et al. How much time do patients spend on outpatient visits?: The American Time Use Survey. 2008. 
Method: survey. Compilation and statistical analysis of ATUS survey data on outpatient visits.
1,621 random sample of patients from 2003–06 ATUS data, age >15
Safford, M. et al. How much time do patients with diabetes spend on self-care? 2005. 
Method: survey. Cross-sectional survey of 1482 diabetic patients enrolled in 3 northeastern United States managed care plans. Statistical analysis using and linear regressions.
1,482 diabetic patients (57.9% >55 yrs)
Wolf, D. Valuing informal elder care. 2004. 
Method: modelling. Addresses through modelling the problem of attaching a monetary value to informal elder care, and why we should; uses NLTCS data to illustrate.
Yabroff, K. et al. Estimating patient time costs associated with colorectal cancer care. 2005. 
Method: survey. Quantitative, longitudinal and comparative time data for cancer/non-cancer care based on past studies and medical records (SEER-Medicare database), and estimates a monetary value of patients' time based on BLS wage rates.
75,470 patients with matched controls