Mass screening for celiac disease from the perspective of newly diagnosed adolescents and their parents: A mixed-method study

Table 1 Number of informants in the different data collections, across study sites.

Study site	CD-cases	Focus group discussion			Written narrative			Questionnaire
		Invited^b	Participated		Invited^b	Participated		Invited^c	Participated
			Adolescents	Parents		Adolescents	Parents		Parents
	n	n	n	n	n	n	n	n	n
Umeå	16	16	8	9	16	7	10	16	10
Norrtälje	18	18	3	8	18	10	13	18	14
Norrköping	17	17	8	12	17	10	13	17	14
Lund	65	65	12	14	65	45	48	65	55
Växjö	29	0	0	0	29	19	21	29	21
Total	145 ^a	116	31	43	145	91	105	145	114
% females	52	54	45	60	52	53	85	52	84
% of invited	--		21	--^d		63	72		79

^a All screening-detected CD cases found in the multicenter CD screening, forming the recruitment basis for this study.
^b Adolescents with their parent(s) were invited.
^c Only parents invited.
^d Not possible to calculate since we do not know the total number of parents living with the adolescents.

ISSN: 1471-2458